I’m ba-ack. You can’t keep a good blogger down. I was thinking earlier today in the many hours of down time I had before I could get back online, that I may have jinxed myself when I started this blog and said I was really boring and nothing very exciting had happened to me. Since then, it has been somewhat of a rollercoaster ride. I guess I should blame the blog.
So I had brain surgery yesterday and I feel fine. Maybe that goes back to my original post where I said I’ve been lucky with side effects to the point that other people will hate me. I’m sure there are plenty of others who’ve had brain surgery who did not then feel fine.
My eyes are still a bit cross-eyed with double vision, but I am crossing my fingers that this might improve as the swelling goes down. They were much better after I first woke up from surgery, but have worsened today. I also still have my numb chin, lips and gums on the left side of my face. However, my neurosurgeon did get rid of all of the fluid that was building up in my brain. He didn’t get all of the slippery little sucker in my cerebellum, but there is a chance he is already dying from the stereotactic radiosurgery I had five weeks ago. We will get a pathology report in about a week to check that out.
I’m still me. I’m pretty sure of that. I don’t really feel any different apart from having a bit of a sore, stiff neck. I’m just on Panadol every six hours now, plus my daily steroids.
I spent last night in the intensive care unit, which was not like I imagined. I thought I would be in a quiet room with people talking in hushed and serene tones. It was not like that at all. Now that I think about it, it makes a lot more sense that it is a crazy, loud place as it is the place where people are taken after they’ve been through major trauma, not just a bit of brain surgery.
Firstly, it was pretty much open plan. We were all just lying out together. I had a little bit of an alcove with one nurse looking after me and another patient. Then there was all the other hubbub happening around us.
So all night you hear ‘[Patient name] open your eyes, open your eyes [Patient name]. OPEN YOUR EYES. Squeeze my hand [Patient name]. Squeeze my hand [Patient name]. SQUEEZE MY HANDS. [Patient name] wiggle your toes. Wiggle your toes for me [Patient name]. WIGGLE YOUR TOES.’ And repeat.
There was also the assortment of beeping machinery and a horrible suctioning noise like when the dentist is using the suction thingy in your mouth. And the doctors and nurses aren’t using a low, quiet voice because it’s 2am. This is their workplace so they are talking at normal levels or shouting across the room at each other. It’s not a place for rest and sleeping. But surprisingly, I did get some sleep.
The other patient being cared for by my lovely overnight ICU nurse had a bit of a freak-out about 1am. He decided he was going home and ripped half his tubes out of himself and tried to leave. He had to be talked around that he couldn’t leave in the middle of the night. Just before this I had been grinning to myself because he had told my/our nurse that he never sleeps during the night. Meanwhile, I was lying there listening to him snore like a chainsaw. Yeah, right mate, I was thinking.
So it certainly has been interesting. I’ve been doing all the neurological tests with various doctors and nurses and I’m super competitive. Push down against them with your legs, feet and hands, push them away. Touch my nose and then their finger as they move it around in front of me. I so want to win every time and prove I’m the best and most amazing patient they’ve ever seen. Can’t help myself.
Today was frustrating because I was ready to be moved out of ICU from early this morning and didn’t end up getting to a normal ward until about 4.30pm. Was going out of my mind with boredom because all of my stuff – suitcase, handbag with phone and iPad, etc. was supposed to be sitting in storage at the general ward for me. As the day dragged on, I knew people would be calling and texting and expecting a reply and there was nothing I could do until they found a bed for me. I’m a patient person, but by about 2pm, I was ready to lose it.
For future reference, I should’ve left my handbag with my father and got him to bring it up to ICU last night so I at least had a way to communicate with the outside world. Lesson learnt for next time.
So overall, I’m a lucky girl. I’ve come through the surgery really well so far and if this trend continues then hopefully I might be able to go home tomorrow.
And I’m sure you’re dying to know, yes I have ordered dessert for every meal so far while in hospital. It’s not the best dessert I’ve ever eaten, but life is too short to skip it!